I am also in the MA area. My son is 37 y/o and he has seriously declined in the past few months. He is non-communicative so its hard to tell what’s wrong. I think he is in pain and also depressed; some days he refuses to eat or take his meds. We are not sure where to turn. His PCP put him on Haldol but I don’t think that’s the answer as he has become incontinent over the past few days. We are considering a Baclofen pump and he also needs a new wheelchair. The botox injections don’t seem to do much to relieve his pain. It just seems that whatever we do causes another problem. Can you share with me the name of your pain doctor in the Boston area?
Thanks so much.